_cystinosis-a-rare-disease.jpg "Cystinosis - A Rare Disease from excretion Video Screenshot Preview")
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⏲ Duration: 1 min 73 sec
✓ Published: 03-Nov-2020
✓ Published: 03-Nov-2020
Description:
Cystinosis is a rare, genetically determined lysosomal storage disease.nnUnfortunately, it often affects young children. This film was developed to motivate children affected by the disease to take their medication, which is essential for survival, on a regular basis. It is very important that children with cystionosis take the medication every two hours. Even at night - which is a huge burden.nnIn Germany, approximately 200 people are affected by cystinosis. Every year, about three to seven bab
Cystinosis is a rare, genetically determined lysosomal storage disease.nnUnfortunately, it often affects young children. This film was developed to motivate children affected by the disease to take their medication, which is essential for survival, on a regular basis. It is very important that children with cystionosis take the medication every two hours. Even at night - which is a huge burden.nnIn Germany, approximately 200 people are affected by cystinosis. Every year, about three to seven bab
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